| This isn't last night, but another, similar moment, picture taken by Liam. |
The jury's still out on whether all this trouble was caused by a small sliver of cheese I absentmindedly ate while making Liam's lunch yesterday. Part of me wants to think so because that would mean I could influence his tummy troubles and possibly avoid the worst of them. By this evening he was back to having moments when he could be awake and calm, although like his brother he knows when he's been left alone and usually hates it.
Still, there are small moments of beauty and joy. That soft, fuzzy head. The creases on those pudgy arms. The occasional expression that looks like a smile and might not be just gas. Sitting on the floor with Liam on my lap and Devin on his. Singing silly songs. Watching his confused face when I lift his arms and say "The baby is SO big!" (I can just hear his little sarcastic self saying, "Really lady, are you just finding this out now? Are my arms the best way you can measure?" I crack myself up.)
So I have veered off track. Jumped the rails, actually. Being a mom, besides being hard and exhausting, gives me joy, brings humor to my life, and fills me with wonder. Also, I fear for my children and when I'm tired and can't give them everything I want to I feel pain because I know that I can't really protect them from the hard realities of the world. I only hope that they can see the joy I find in loving them and find enough comfort in that to...what? To have lives that are mostly characterized by loving, joyful relationships? To weather the grief that comes along? To have memories and build lives that are full of small, beautiful moments? Something like that. When I'm running on empty I want everything for my children. Everything good I can think of. And some of the good I can't even imagine. I remind myself that I can't give them most of what I want for them. I can only touch them and see them and listen to them and be with them. And only as much as I can. No guarantees, but I think it will make a difference.
Hi,
ReplyDeleteI've been lurking on your blog for a while and felt it was really time for me to introduce myself :-) My name's Heather and I'm married to Martin with whom you went to school in the Phillipines. I think he said that you were a year or two younger than him. He's one of your Facebook friends.
I came across you on his Facebook feed and really appreciated some things you had to say. I have CFS, too, and liked some comments you made about what that's like a few months ago. I felt a huge sense of kinship. And then your blog post about the 'good baby' was something I could have written myself. I also liked some things you wrote a while back about gender expectations with the toy Liam wanted to choose at the doctor's. And I really appreciated this post I'm commenting on :-)
I come from quite a different place from you both culturally and politically yet those other connections make you feel like a person 'like me'. That mix of 'like' and 'not like' means that you have helped me to understand a bit better a few attitudes that are quite foreign to me.
Anyway, I realised I was starting to feel a bit like I knew you so I figured it was past time I let you know I existed!
I've had CFS for 10 years and am mostly bed-bound with it. Martin and I are unable to have kids because I'm so sick, but I'm very interested in parenting and love watching kids develop. A few 'real world' friends have been kind enough to share their kids with me, plus I follow your blog and a couple of others and appreciate the glimpses they give me.
I enjoy writing and have a blog. I also like to sew, bake and (mostly vicariously) garden. My blog is mostly a mix of those things and my current theological reflections. I also write occasional long-form articles - mostly about CFS. Before I became ill I was studying for a PhD in chemistry.
Martin and I live in Auckland, New Zealand with a friend from university days called Sarah.
--Heather :-)
Hi Heather! So sorry I missed your comment before! I try to check, but I don't use my google mail really so maybe that's why I missed it.
DeleteI had corresponded with Martin a little in the past about your situation and I think I might have checked out your blog at some point. I just wanted to respond to you now before I forgot. I am easily distracted at the moment - or maybe just really busy.
Thanks for your interest in my blog. It is awesome to be able to be involved in the lives of others and can add some joy that is much needed. The internet can be such a blessing as a way for those who would otherwise be much more alone to have some human contact. Face-to-face can't be replaced though, so I'm glad you have some of that.
Martin was more of a help to me than he may have realized "back in the day." I could often count on him to help me with math homework and he helped me get in with the "Hitchhiker's Guide to the Galaxy" Fan Club which I really enjoyed.
I have tried a couple of times in this reply to say something helpful and encouraging about health but decided to leave it out for now. I can relate to where you are right now. I hope the best for you in that regard.
Blessings to you,
Rachel
Dear Rachel,
DeleteI only just spotted your reply a couple of days ago - thanks so much for your words :-) I thought I'd set it to notify me if there was a reply to my comment, but apparently not. Martin appreciated what you said about him, too.